This story was shared in Spanish, the English version has been translated and in the event of any discrepancies, the original version below with prevail.
I have always been the most vulnerable in my family, half of my life has been in hospitals and medical appointments, everything hurt and I was sick all the time.
No one could ever give me a diagnosis, but I knew that my body was warning me that something was not right and I kept investigating. One morning I woke up with a pain that I had never felt before. I passed out, then I arrived at the hospital and my struggle to live began. With internal bleeding, I was torn between life and death with little hope that I would survive.
I had lots of tests done to understand what was happening in my body, and then in that battle for my life I was diagnosed with vascular Ehlers-Danlos syndrome (vEDS), and that’s when I was finally able to put together the puzzle. My life has never been the same since that episode but thanks to that day I have a diagnosis and today I cling to life more than ever.
Original:
Siempre fui la mas vulnerable de mi familia, la mitad de mi vida ha sido en hospitales y citas medicas, todo me dolía y me enfermaba todo el tiempo.
Nunca nadie pudo darme un diagnóstico, pero yo sabia que mi cuerpo me estaba avisando que algo no estaba bien y seguía indagando. Una mañana me levanto con un dolor que nunca antes había sentido, desmayada llego al hospital y empieza mi lucha por vivir. Con un infarto en el riñón y un sangrado interno me debatía entre la vida y la muerte con pocas esperanzas de que sobreviviera.
Me hicieron cantidades de exámenes para entender que pasaba en mi cuerpo, y entonces en esa batalla por la vida me diagnosticaron una enfermedad rara que pocas personas la tienen en el mundo, VEDS, y es entonces cuando por fin pude armar y rompecabezas. Mi vida nunca volvió a ser la misma desde aquel episodio pero gracias a eso hoy tengo un diagnóstico y hoy me aferro a la vida mas que nunca.
