Published: 10/05/2023 Tags: Stories

My Pregnancy Journey With cEDS

Six months ago, I had my baby after having a difficult pregnancy journey. My daughter was born at 37 weeks after my water broke three days before. This condition is known as Preterm Premature Rupture of Membranes [PPROM].

Thankfully, I had open-minded gynaecologists who listened to what I told them about Ehlers-Danlos syndromes (EDS). This made us very prepared. I used to send gynaecologists research articles about complications associated with pregnancy in EDS patients.

I was put on steroids at 28 weeks to help my baby’s lungs mature faster in case she would come early. I also had cardiology tests done to find out if I could take a c-section.

Additionally, I acquired knee braces and compression socks from the physiotherapy department of the hospital where I work to help alleviate my unstable joints and swollen legs.

Furthermore, I was able to get approved bed rest when I was 7 months pregnant, which was recommended by my gynaecologists and physiotherapist. By advocating for myself, I was able to get the best maternal care.

I was able to deliver a healthy baby girl although she was underweight. My little angel is now healthy and at the right weight for her age.

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