Hi, I’m Dulce from México. Since I was little (about 6 years old) I started to feel strange, physically and emotionally. I didn’t know what was happening to me.
When I grew up, those physical and emotional discomforts continued.
Suddenly I get tachycardia or bradycardia, parts of my body goes numb, a lot of pain in my jaw (I developed bruxism), a lot of body contractures, I wake up feeling very heavy or as if a truck had run over my whole body, (Sometimes I feel like my body is inflamed). Most of the time I feel tired during the day and when I’m not, I feel too energetic which causes me insomnia.
My knee and some fingers of my hand get stuck with certain movements (my fingers get stuck when I button up a pair of pants). I also have clicking in my ribs, arms and jaw. I developed scoliosis, I have neck an back pain all the time. My body gets tired easily with certain movements or jobs and I am very sensitive to cold and to the noise.
I also have a sensitivity to emotional factors and all sensations of my body and external factors. That sensitivity tends to give me panic attacks suddenly and without apparent cause.
I have the presence of bruises out of nowhere on the body, irritable bowel syndrome and others gastrointestinal problems, nausea, dizziness, mitral vulvar prolapse and lately a slight discomfort in the wrist joints of the hands, among other symptoms including hyperlaxity.
Throughout my life I have visited all kinds of doctors looking for an explanation for my ailments, but they all directed me to psychology and psychiatry.
I spent a lot of money for years on psychological therapy of all kinds (cognitive-behavioral, hypnosis, gestalt, etc.) but nothing made me feel 100% well.
On February 17, 2024 I had septic shock, the cause was my gallbladder (my gallbladder was not that sick, but with the sensitivity of my body I felt the discomfort very strongly) after my recovery. I realized that my symptoms became more chronic, so I took it upon myself to find the cause of my symptoms.
At 32 years old I discovered the cause of my symptoms so I looked for a geneticist to confirm my diagnosis. Hypermobile Ehlers-Danlos syndrome.
Yes, the hypermobile Ehlers-Danlos Syndrome is the cause of all my physical and emotional symptoms. I still have a study pending to confirm or rule out dysautonomia and food intolerances related to the same syndrome.
On the outside I may look like a completely healthy girl, but I have many ailments that are invisible to others.
