Published: 20/09/2021

EDS affects me every day of my life

I started having pain and issues around 7 years old, but it wasn’t until I was almost 16 that I was diagnosed with Ehlers-Danlos syndrome (EDS).

I went through hundreds of tests, procedures, and I was even told that it was “in my head.”

EDS affects me every day of my life in many different ways. My symptoms change, they come and go, but back pain, anxiety, and digestive issues always are an issue. Because my condition is visible no one understands what I go through on a daily basis. I’ve tried multiple things for the pain, discomfort, anxiety, and depression that come along with it, which help but do not cure.

Although having EDS has affected my life in many negative ways, it has shaped me into the strong person I am today.

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