Published: 11/03/2021

Tabby’s diagnosis should have not taken 14 years

My daughter Tabby was finally diagnosed with hypermobile EDS (hEDS) in 2018. Over the years we saw around eight different doctors for her pain, injuries, stomach problems, and other issues. Finally, a foot doctor mentioned EDS which led to her diagnosis of hEDS!

It should not have taken fourteen years for a diagnosis.

“Tabby, with the help of KidAcademy Learning Center of Mount Laurel, NJ, raised a total of $45 to help raise awareness and support The Ehlers-Danlos Society on its mission. We sold zebra hair bands during May Awareness Month to raise awareness!” Rachel


Virtual Support Groups

Let’s Chat

Would you like to speak to others living with EDS and HSD but can’t get to any support group meetings, events, or conferences?

Our weekly, monthly, and quarterly virtual support groups for people from all over the world are a chance to come and share your story and chat with others for support.

Related Stories

View all Stories

Sign up to The Ehlers-Danlos Society mailing list