My daughter Tabby was finally diagnosed with hypermobile EDS (hEDS) in 2018. Over the years we saw around eight different doctors for her pain, injuries, stomach problems, and other issues. Finally, a foot doctor mentioned EDS which led to her diagnosis of hEDS!
It should not have taken fourteen years for a diagnosis.
“Tabby, with the help of KidAcademy Learning Center of Mount Laurel, NJ, raised a total of $45 to help raise awareness and support The Ehlers-Danlos Society on its mission. We sold zebra hair bands during May Awareness Month to raise awareness!” Rachel