I am 1 of 5 grown children, 2 brothers, and 2 sisters (the sisters both have Ehlers-Danlos syndrome in varying degrees of disability). One sister has experienced the symptoms of it since her days in high school and college, thinking it was neat that she could reach her hand backward and touch her wrist. She now wears braces to help with her mobility and has multiple internal organ issues and conditions which are secondary to the EDS.
The other sister has hyperelasticity, dislocating joints, a weakened vascular system, had a cerebral event due to multiple brain bleeds, neurological deficits: cognition and speech, loss of muscle ability, is on an umbilical feeding tube, and has to have an IV overnight to help keep her hydrated.
Both sisters have poor recovery (healing) from surgical procedures. I often am wondering if my Sleep Apnoea (mixed) Central /Obstructive could have been caused by EDS. I also have had knee dislocations, but I believe they were from the trauma of slips, trips, and falling. I also have folds in the back of my retinal wall of my left eye, but they don’t know why.
