Published: 11/03/2021

After two decades I finally have a treatment plan

From dark times

I have always been hypermobile and very agile but I always complained of feeling aches and pains as a child; we thought they were growing pains. After a cheerleading accident in my teens, all the symptoms that come along with hypermobility spectrum disorder (HSD) seemed to make matters worse. Symptoms of fatigue, joint and muscle pain, headaches, TMJ, GI upset, dislocations and subluxations, strains and tears (to name a few), all got worse and worse and no one seemed to have answers. All these lead to days that I could hardly cope with and days of darkness and desperation.

I tried to look for answers, advocated for myself, and looked to many medical modalities to aid all my symptoms. It’s been a long and tiring road but I knew deep down inside that all these symptoms had to be related.

To a bright new future

Fast forward almost two decades after my cheerleading injury, after almost two decades of living without answers, aches and pains, I finally have a proper diagnosis and treatment plan. This could not have happened without the support of my family and friends, my strong and ongoing Faith, the progressive doctors and health professionals that I have searched for high and low, The EDS Society, and the new Good Hope Clinic in Toronto that I fought to get into and that is supporting me in this life long journey.

During May Awareness Month I raised awareness and $185 for The Ehlers-Danlos Society so others who do not have the strength to search, ask and stand up for themselves get the help they need. I believe I was put on this earth to help others. Ruth

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