I have always shown signs of Ehlers-Danlos syndrome (EDS) as a baby, but my mom didn’t want to believe that something was wrong with me. I was very clumsy as a child and I would get teased by my dad that I was a clutz.
I have subluxated my fingers so much that now they’re crooked and I didn’t realize it. I was a majorette as a child and I ran in the Special Olympics and didn’t realize that I would wear out easily after the race.
It took me turning 49 to finally put the pieces together and get a diagnosis of classical EDS (cEDS). I also got my diagnosis of POTS in 2024 from my Neurologist. I also live with epilepsy.
