Published: 08/06/2016 Tags: Ehlers-Danlos in the News

Student who needed EIGHT operations to stop her brain ‘falling through her skull’ is now hoping to be crowned Miss America

A student who has endured eight operations to stop her brain stem from being crushed by her skull is hoping to compete in Miss America.

Victoria Graham, 22, suffers from Ehlers-Danlos Syndrome (EDS), which is causing her head to sink into her neck.

Every day actions like a handshake, a gentle touch or even walking on an uneven pavement can cause her joints to pop out of place due to the connective tissue disorder.

The agonising condition, which weakens the collagen in her body, means her bones can dislocate up to ten times a day.

But this has not stopped her from being successful playing sport at college and has now even been crowned a beauty queen.

She now hopes to use her success to give EDS sufferers ‘a voice’ before the condition is likely to leave her in a wheelchair.

Read the complete original article

Virtual Support Groups

Let’s Chat

Would you like to speak to others living with EDS and HSD but can’t get to any support group meetings, events, or conferences?

Our weekly, monthly, and quarterly virtual support groups for people from all over the world are a chance to come and share your story and chat with others for support.

Related Posts

View all Posts

Sign up to The Ehlers-Danlos Society mailing list