Alaska Support Groups and Charities

It is important to note that The Ehlers-Danlos Society does not have any ownership or direct financial interest in any of the specific organizations or groups listed below. Groups listed below are in-person support groups and nonprofit organizations/charities. The Ehlers-Danlos Society does not guarantee or make any warranties, express or implied, as to the quality of advice or support given by any listed group or organization. The information listed in the results is based solely upon the data entered by the groups listed.


For information on the Alaska Hope EDS Support Group, contact Cissy Buck at or visit the website at Being that Alaska is a big state and has little access to medical teams that are available in the lower 48 states, it is important that a network be built up here. By working together, each of us can play a significant supportive role to one another by providing that gentle hug, doctor recommendation, orthopedic support recommendation, and much more.

To add your EDS support group or charity, please complete the Support Group Listing Request form. To become an affiliate of the Society, please visit the Global Affiliation Program page.