Arizona Support Groups and Charities

It is important to note that The Ehlers-Danlos Society does not have any ownership or direct financial interest in any of the specific organizations or groups listed below. Groups listed below are in-person support groups and nonprofit organizations/charities. The Ehlers-Danlos Society does not guarantee or make any warranties, express or implied, as to the quality of advice or support given by any listed group or organization. The information listed in the results is based solely upon the data entered by the groups listed.


AZ Zebras is the Ehlers-Danlos syndrome support group for the Phoenix metro area and throughout the state. We have members in most areas of the state. Our group is made up of Arizonans who are affected by EDS. We welcome those who have EDS as well as those who are affected by having loved ones with EDS. We meet 1-2 times per month in various locations around the greater Phoenix area.

We have an active Facebook page to support each other and share information and experiences between meetings. Meeting dates and location are sent out to all who request to be added to our e-mail list and are posted on our Facebook page and website.
Anyone interested in joining Az Zebras is welcome to e-mail and/or request to join our Facebook page at Follow us on Twitter at See our website at

If you request to join our Facebook page, please watch your “others” folder for a personal message (PM) from the admin (or you may also send a PM to the page admin).

To add your EDS support group or charity, please complete the Support Group Listing Request form. To become an affiliate of the Society, please visit the Global Affiliation Program page.