Arizona Support Groups and Charities


PhoenixEDS is the Ehlers-Danlos syndrome support group for the Phoenix metro area and throughout the state. We have members in most areas of the state. Our group is made up of Arizonans who are affected by EDS. We welcome those who have EDS as well as those who are affected by having loved ones with EDS. We meet 1-2 times per month in various locations around the greater Phoenix area.

We have an active Facebook page to support each other and share information and experiences between meetings. Meeting dates and location are sent out to all who request to be added to our e-mail list and are posted on our Facebook page and website.
Anyone interested in joining PhoenixEDS is welcome to e-mail and/or request to join our Facebook page at Follow us on Twitter at See our website at

If you request to join our Facebook page, please watch your “others” folder for a personal message (PM) from the admin (or you may also send a PM to the page admin).


The Tucson EDS support group meets monthly, usually the last or second to last Saturday of the month. Contact the group at their Facebook page, Tucson Ehlers-Danlos Syndrome Meetup:

If you have and EDS support group or charity you to add to this list, please complete the Support Group Listing Request form.