California Support Groups and Charities

It is important to note that The Ehlers-Danlos Society does not have any ownership or direct financial interest in any of the specific organizations or groups listed below. Groups listed below are in-person support groups and nonprofit organizations/charities. The Ehlers-Danlos Society does not guarantee or make any warranties, express or implied, as to the quality of advice or support given by any listed group or organization. The information listed in the results is based solely upon the data entered by the groups listed.

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Humboldt EDS Group

Humboldt EDS group is a Northern California support group for folk with EDS in Humboldt County, CA.

For more information, email Stayce Curry.

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Los Angeles

To learn more about the Zebra Group, contact Donna Acosta at tigermom2@msn.com. We are a group of EDSers that support and help each other and share EDS info with each other. We are a little EDS family who would love to grow with more members! We have monthly meetings just outside of Los Angeles.

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San Diego

San Diego EDS Support Group has bimonthly meetings. We provide support between meetings via internet and phone with occasional one on one Support as needed for those who can’t make our scheduled meeting times.

We also provide access to a member compiled list of EDS=familiar physicians and specialists in our area to aid in finding quality care for our community members. We focus on raising awareness and keeping everyone connected with the most up to date EDS diagnosis guidelines and helpful resources. We strive to have our attendees feel comfortable and supported so everyone knows they’re welcome not only when Support is needed but also when things are going well.

For more information, email sdehlersdanlos@gmail.com.

Stay Bendy Stay Strong




To add your EDS support group or charity, please complete the Support Group Listing Request form. To become an affiliate of the Society, please visit the Global Affiliation Program page.