California Support Groups and Charities

Los Angeles

To learn more about the Zebra Group, contact Donna Acosta at We are a group of EDSers that support and help each other and share EDS info with each other. We are a little EDS family who would love to grow with more members! We have monthly meetings just outside of Los Angeles.

Northern California

The volunteers in Northern California have chosen to encourage local support and networking in a form that is less formal than a traditional support group with rigid meeting and governance requirements. We network through online message boards on Inspire and via two different Facebook Group pages: EDS Support of Northern California and EDS Support Group, SF and Northern California. Any individual is welcome to set up a date/time to meet in person. The first step is to identify a place in your area and pick a date/time you want to be there; i.e., at a coffee shop near your home or work. Then invite others to meet you there for an hour by posting an invitation on the Inspire boards, via email, Facebook event, etc.

San Diego

Local Group of Greater San Diego has meetings on the second Sunday of every month at 1 p.m. at the Cushman Wellness Center, Sharp Memorial Outpatient Pavilion, 3075 Health Center Drive, San Diego. Meetings are held on the first floor. Parking is available at the garage right next to the Outpatient Pavilion for $3 or free with a handicapped card. Parking can usually be found on Health Center Drive with a short walk to the Pavilion.

We are organizing a second meeting in Encinitas for those who are in north county. Date and time may vary until more consistent attendees are established.

Our goal is to support each other and share our knowledge and experience with EDS. These support group meetings are public. We welcome family and friends.  We also welcome people with similar connective tissue disorders, since we can certainly find enough in common to connect. Contact Michelle Retta at

**********STAY BENDY!!! STAY STRONG!!! ************

San Fernando Valley

The San Fernando Valley Zebras is a Support Group for people with Ehlers-Danlos syndromes in the San Fernando Valley area of Los Angeles, CA. We gather online and in person (roughly once a month) to support one another. Please contact Elana Simon at with any questions, comments, concerns, suggestions.

Click here to participate in the SFV Zebra Member Survey.

Click here to find our Facebook Group.

Ventura County

“805 Ehlers-Danlos Support” is an online support group that meets once a month in Ventura, California. We welcome adults, teens, caregivers, and support people. We also welcome people with Marfan, Chiari, POTS, dysautonomia, IH, or any other comorbidity of the Ehlers-Danlos syndromes. Check us out on Facebook. We suggest sending a PM to be approved into the group, or contact Dena Piquette-Garcia at 805-607-4616.

If you have and EDS support group or charity you to add to this list, please complete the Support Group Listing Request form.