The ILC/EDS Charitable Foundation
The ILC/EDS Foundation is a national charity providing a comprehensive peer resource network and annual Canadian medical education (CME) accredited conference, catalyzing efforts to improve access to care to affected children and individuals. The ILC has committed in-kind contribution of $2M over five years to the Canadian Institute for Health Research Strategic Patient Oriented Research (CIHR-SPOR) Chronic Pain Network, connecting the EDS patient population with researchers to help shape the kinds of national and international (with the Society) studies that will be done.
A national non profit organization that dates back to 2009 grown through our online private support group to approx 500 members. They received their non profit status in 2013. They advocate with legislators, researchers and medical professionals while also supporting adults and families through a very active online group. In addition, they hold peer to peer support groups and socials across the provinces.
Canadian Ehlers-Danlos Foundation
This group meets in Mississauga and surrounding areas. Anyone who has chronic pain is welcome. Visit our Facebook page.
If you have and EDS support group or charity you to add to this list, please complete the Support Group Listing Request form.