It is important to note that The Ehlers-Danlos Society does not have any ownership or direct financial interest in any of the specific organizations or groups listed below. Groups listed below are in-person support groups and nonprofit organizations/charities. The Ehlers-Danlos Society does not guarantee or make any warranties, express or implied, as to the quality of advice or support given by any listed group or organization. The information listed in the results is based solely upon the data entered by the groups listed.
EDS Colorado Springs meets monthly to connect and share information in a supportive environment for Ehlers-Danlos syndrome community’s health and wellness. Contact Caroline at email@example.com for more information or join our Facebook group, https://www.facebook.com/groups/EDSColoradoSprings.
We meet quarterly for our formal support group meetings and have monthly events in between including social, fundraising and special guest speakers. We invite those affected by all types of EDS and/or Joint Hypermobility Syndrome, and other connective tissue disorders, including their families and friends. Our purpose is to connect and support each other as well as bring awareness and education into our community and to the medical field. If you would like more information please contact Kara at Ehlersdanlosco@gmail.com. We will get back to you as soon as possible, but it could take up to 24-48 hours.
Denver EDS Support Group for Teens
This is on-going, bi-weekly support group in Denver, Colorado that has been specifically created and tailored for teens 13-17 years old who have been diagnosed with Ehlers-Danlos syndrome (EDS) of all types. This EDS support group for teens will provide each teen with the opportunity to meet and socialize with other teens experiencing EDS while also learning how to navigate life given the struggles that often occur alongside an EDS diagnosis.
At this time, this EDS support group is only open to teens 13–17 years old who are diagnosed with any one of the types of EDS. All interested parties must apply to join this group due to limited space. To apply to join this group and/or learn more, please visit https://interfaithbridge.com/eds or email firstname.lastname@example.org. Once applied, additional information such as time and dates will be made available to you.
Furthermore, it is important to note that our office is ADA accessible and LGBTQ+ friendly, and all group members reserve the right to accommodation.
Loveland and Northern Colorado
NoCoZebra Crossing holds a monthly support meeting to share resources, ask questions, and receive support from other local zebras. For more information, email email@example.com.
To add your EDS support group or charity, please complete the Support Group Listing Request form. To become an affiliate of the Society, please visit the Global Affiliation Program page.