Connecticut Support Groups and Charities

New Milford

Connecticut Zebras is an EDS support group for adults and children who live in CT, NY, and MA. Meetings will take place at the Connecticut Center for CranioSacral Therapy in beautiful, historic New Milford, CT. There is wheelchair accessibility. Exact schedule is yet to be determined, but meetings will most likely occur one Sunday every other month, beginning in July. Education, camaraderie, support, and friendship will be offered.

Historic New Milford is a quintessential New England town. Within walking distance of the meeting place, there are multiple restaurants, 2 hotels and an old-fashioned movie theater, Plus lots of shops! Make a day of it!

For more information, contact Eloise Stager at

Western Connecticut

The Western Connecticut Ehlers-Danlos Syndrome Local Support Group (Western CT EDS) was founded in June 2005. Meetings are held primarily in West Hartford, 2-4 times a year. The meeting format allows members to share about their current status and hear how other members are dealing with similar situations.

Western CT EDS has a strong email presence – with members able to share questions and answers beyond meetings. Having spent 10 years as a community in this area, members are able to share doctor recommendations as well as their experiences dealing with many aspects of living with Ehlers-Danlos Syndrome.

We are always happy to have new members join us, including those affected by EDS as well as their families and friends. To learn more, contact Sandra Buscher at

If you have and EDS support group or charity you to add to this list, please complete the Support Group Listing Request form.