Connecticut Support Groups and Charities

It is important to note that The Ehlers-Danlos Society does not have any ownership or direct financial interest in any of the specific organizations or groups listed below. Groups listed below are in-person support groups and nonprofit organizations/charities. The Ehlers-Danlos Society does not guarantee or make any warranties, express or implied, as to the quality of advice or support given by any listed group or organization. The information listed in the results is based solely upon the data entered by the groups listed.

New Milford

Connecticut Zebras is an EDS support group for adults and children who live in CT, NY, and MA. Meetings will take place at the Connecticut Center for CranioSacral Therapy in beautiful, historic New Milford, CT. There is wheelchair accessibility. Exact schedule is yet to be determined, but meetings will most likely occur one Sunday every other month, beginning in July. Education, camaraderie, support, and friendship will be offered.

Historic New Milford is a quintessential New England town. Within walking distance of the meeting place, there are multiple restaurants, 2 hotels and an old-fashioned movie theater, Plus lots of shops! Make a day of it!

For more information, contact Eloise Stager at

Western Connecticut

The Western Connecticut Ehlers-Danlos Syndrome Local Support Group (Western CT EDS) was founded in June 2005. Meetings are held primarily in West Hartford, 2-4 times a year. The meeting format allows members to share about their current status and hear how other members are dealing with similar situations.

Western CT EDS has a strong email presence – with members able to share questions and answers beyond meetings. Having spent 10 years as a community in this area, members are able to share doctor recommendations as well as their experiences dealing with many aspects of living with Ehlers-Danlos Syndrome.

We are always happy to have new members join us, including those affected by EDS as well as their families and friends. To learn more, contact Sandra Buscher at

To add your EDS support group or charity, please complete the Support Group Listing Request form. To become an affiliate of the Society, please visit the Global Affiliation Program page.