Union Nationale des Syndromes d’Ehlers-Danlos
The UNSED group is designed to inform patients about medical and therapeutic advances around the world based solely on the criteria of the international consortium. We are best oriented towards EDS specialists.
https://www.facebook.com/Valérie-Gisclard-Présidente-UNSED-Ehlers-Danlos-231984276866143/
To add your EDS support group or charity, please complete the Support Group Listing Request form. To become an affiliate of the Society, please visit the Global Affiliation Program page.