Illinois Support Groups and Charities

It is important to note that The Ehlers-Danlos Society does not have any ownership or direct financial interest in any of the specific organizations or groups listed below. Groups listed below are in-person support groups and nonprofit organizations/charities. The Ehlers-Danlos Society does not guarantee or make any warranties, express or implied, as to the quality of advice or support given by any listed group or organization. The information listed in the results is based solely upon the data entered by the groups listed.

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Central Illinois EDS Support Group

We are here for those affected by Ehlers-Danlos syndromes in our area. We are based out of our capital city of Springfield and have members spanning the Central Illinois area as well as a few from our surrounding northern and southern areas. We were established in 2012 after seeing a need for support in our region. You can visit our group website on Facebook at www.facebook.com/groups/CentralIllinoisEDSSupport. For questions by email, write llyons12665@gmail.com. We have occasional casual support group get-togethers to have an opportunity to meet others who understand life with EDS. We look forward to what the future has in store for EDS awareness and support for those in our area.




To add your EDS support group or charity, please complete the Support Group Listing Request form. To become an affiliate of the Society, please visit the Global Affiliation Program page.