Illinois Support Groups and Charities

Champaign Urbana Ehlers Danlos Support Group (CUEDS)

Mettings: First Saturday of the month from 1pm-3pm at:

Carle Hospital, the main building. The meeting will be held in Classroom B in the back of cafeteria on the basement level.
Urbana, Illinois

Contact: Deborah Royce,

Visit the Champaign-Urbana EDS Support Facebook group

Park in the Carle Garage opposite the Main Lobby doors.


The Chicago EDS Support group is a herd of zebras ranging from young to the young at heart.  We generally meet the first Saturday of each month from 11 am to 1 pm in Chicago.  Past meeting topics include invited guest speakers, programming sessions, and group discussions about living and being diagnosed with EDS.  The group and meetings are open to EDS’ers, our allies, and those who are just beginning the diagnosis process.  To contact the Chicago EDS leadership committee, or for information on our monthly event topic/location, please reach us through our Facebook or MeetUp page.

If you have and EDS support group or charity you to add to this list, please complete the Support Group Listing Request form.