Indiana Support Groups and Charities

It is important to note that The Ehlers-Danlos Society does not have any ownership or direct financial interest in any of the specific organizations or groups listed below. Groups listed below are in-person support groups and nonprofit organizations/charities. The Ehlers-Danlos Society does not guarantee or make any warranties, express or implied, as to the quality of advice or support given by any listed group or organization. The information listed in the results is based solely upon the data entered by the groups listed.

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Fort Wayne

The Northern Indiana EDS Support Group meets in Fort Wayne, Indiana. We have a closed group on Facebook to support one another and to share information and experiences between meetings. Anyone interested in joining the Northern Indiana EDS Support Group is welcome to e-mail us at and/or request to join our Facebook group.

EDS Affiliate Logo


The Fast Track Zebras support group meets the first Friday of each month at Fast Track Physical Therapy, located at 9082 US-36 in Avon, Indiana. Those with any form of EDS or HSD, support people, caregivers, etcetera are welcome to attend. Serving Indianapolis and surrounding areas. We also have a closed Facebook group (Fast Track Zebras). For questions or more information, please email


Lafayette Area Zebras has members from Lafayette and West Lafayette. We try to meet up in person about once a month, usually in Lafayette. Anyone in Northern Indiana who isn’t close enough to Fort Wayne or Indianapolis to physically participate in any of their functions is welcome. Get in touch through our Facebook group.


Serving northern Indiana and southwestern Michigan. Quarterly meetings are typically held in South Bend or Mishawaka. We also have an EDS awareness booth at the Sunburst Races Expo. For more information or to be put on the mailing list, email

To add your EDS support group or charity, please complete the Support Group Listing Request form. To become an affiliate of the Society, please visit the Global Affiliation Program page.