Kentucky Support Groups and Charities

It is important to note that The Ehlers-Danlos Society does not have any ownership or direct financial interest in any of the specific organizations or groups listed below. Groups listed below are in-person support groups and nonprofit organizations/charities. The Ehlers-Danlos Society does not guarantee or make any warranties, express or implied, as to the quality of advice or support given by any listed group or organization. The information listed in the results is based solely upon the data entered by the groups listed.


“Our support group welcomes all those living with Ehlers-Danlos in the Kentuckiana area. We have regular meetings where we can share our experiences, information we have learned and together spread awareness. Our Facebook page “Kentuckiana EDS” will have information on meetings and more. Anyone interested in joining our EDS Support Group is welcome to email us at and/or request to join our Facebook group.”

To add your EDS support group or charity, please complete the Support Group Listing Request form. To become an affiliate of the Society, please visit the Global Affiliation Program page.