Louisiana Support Groups and Charities

It is important to note that The Ehlers-Danlos Society does not have any ownership or direct financial interest in any of the specific organizations or groups listed below. Groups listed below are in-person support groups and nonprofit organizations/charities. The Ehlers-Danlos Society does not guarantee or make any warranties, express or implied, as to the quality of advice or support given by any listed group or organization. The information listed in the results is based solely upon the data entered by the groups listed.

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EDS Louisiana Inc

This meeting is for persons affected by Ehlers-Danlos syndromes and related conditions, such as Dysautonomia, Mast Cell Activation Disorder, Postural Orthostatic Tachycardia Syndromes, Chronic Fatigue Syndrome, Fibromyalgia, IBS, Chronic Pain, or others. 

Anyone in Louisiana who is affected by these conditions is welcome to join us. You are not alone. Come to give and get support. 

We are stronger together! 

Every time we meet, we realize how similar we all are to one another. We are so much alike!  Come and find your tribe! 

April Torres (Founder & President)
Email: Edslouisiana@gmail.com
Phone: 337-255-6160 
Facebook: https://www.facebook.com/EDSLouisianaInc/

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Louisiana EDS Zebras

Louisiana EDS Zebras is our Louisiana Ehlers-Danlos syndrome support group. This group is made up of those living in Louisiana who are affected by EDS. This includes adults, children, teens, women, and men. Anyone with EDS or that has a loved one with EDS is welcome in our group. Currently we have an active Facebook group where you can learn and pass on valuable information to others. Meeting dates and locations will be sent out to all who request to be added to our email list and to the Facebook page. If you are interested in joining our Louisiana EDS Zebras group please email Angelle Painter at LouisianaEDSZebras@gmail.com and/or request to join our Facebook page. We look forward to meeting you soon!

To add your EDS support group or charity, please complete the Support Group Listing Request form. To become an affiliate of the Society, please visit the Global Affiliation Program page.