Maryland Support Groups and Charities

Maryland EDS Support Group

The Maryland EDS support group welcomes everyone with EDS and related conditions and their family members. Our group meets quarterly, usually in Ellicott City. We enjoy EDS experts and other knowledgeable speakers at our meetings. We have social get-togethers and other opportunities in between, scattered around the state which gives group members the opportunity to have fun with others who really “get it”. Our Maryland EDS support group provides a Google group for members to discuss local resources, maintains a Doctors List, and has a teen group. We welcome you and those you love to learn how to live better with EDS and make lots of friends in the process. If you would like to learn more or would like to join the Maryland EDS support group, please email Shani and Jill at

EDS Wellness

EDS Wellness is a 501(c)(3) non-profit organization promoting health education, integrative healthcare, and wellness strategies for living well with hypermobility syndromes, such as Ehlers-Danlos syndrome (EDS), and related conditions through the publishing of print and digital media resources and materials, including seminars, webinars, conferences, wellness coaching and patient advocacy.

EDS Wellness provides education on various movement, nutrition, and mind-body techniques by collaborating with healthcare practitioners and like-minded organizations, to improve the quality of life and overall well-being of individuals living with EDS and other chronic, often invisible illnesses.

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Tri-State EDS Support Group (MD, WV, VA)

Tri-State EDS Support Group (MD, WV, VA) We will meet on the third Thursday of each month from 6-8pm on the campus of WV University Healthcare at the Dorothy McCormack Center Conference room off of exit I-81/exit 14 in Martinsburg, WV (conveniently located between Hagerstown, MD and Winchester, VA). Please find us on Facebook at If you have any questions or concerns you can reach our local leader, Ashton Nesmith-Kochera via e-mail at

We would love to have you join us if you are located Frederick/Hagerstown, MD/ Eastern Panhandle, WV / Winchester, VA areas!


If you have and EDS support group or charity you to add to this list, please complete the Support Group Listing Request form.