Maryland Support Groups and Charities

It is important to note that The Ehlers-Danlos Society does not have any ownership or direct financial interest in any of the specific organizations or groups listed below. Groups listed below are in-person support groups and nonprofit organizations/charities. The Ehlers-Danlos Society does not guarantee or make any warranties, express or implied, as to the quality of advice or support given by any listed group or organization. The information listed in the results is based solely upon the data entered by the groups listed.

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Ehlers-Danlos Support Group of Southern Maryland

We meet every first Wednesday of the month at 22715 Washington St., Leonardtown, MD 20650 which is a physical therapy office who allows us to use their building for free. My goal is that we will begin promoting awareness throughout southern Maryland as well as provide emotional support to those of us living with EDS. Our Facebook address is https://www.facebook.com/groups/2014448205241139/ and you can get in touch through somd.eds.group@gmail.com.

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Maryland EDS Support Group

The Maryland EDS support group welcomes everyone with EDS and related conditions and their family members. Our group meets quarterly, usually in Ellicott City. We enjoy EDS experts and other knowledgeable speakers at our meetings. We have social get-togethers and other opportunities in between, scattered around the state which gives group members the opportunity to have fun with others who really “get it”. Our Maryland EDS support group provides a Google group for members to discuss local resources, maintains a Doctors List, and has a teen group. We welcome you and those you love to learn how to live better with EDS and make lots of friends in the process. If you would like to learn more or would like to join the Maryland EDS support group, please email Shani and Jill at MarylandEDS@gmail.com.




To add your EDS support group or charity, please complete the Support Group Listing Request form. To become an affiliate of the Society, please visit the Global Affiliation Program page.