Michigan Support Groups and Charities

It is important to note that The Ehlers-Danlos Society does not have any ownership or direct financial interest in any of the specific organizations or groups listed below. Groups listed below are in-person support groups and nonprofit organizations/charities. The Ehlers-Danlos Society does not guarantee or make any warranties, express or implied, as to the quality of advice or support given by any listed group or organization. The information listed in the results is based solely upon the data entered by the groups listed.

Capital Area

Capital Area Ehlers-Danlos Support Group is a support group for those with EDS, their families, and friends. We plan to have short presentations by guest speakers at each monthly meeting, if possible, as well as give and take among group members. Share your favorite method of coping, let us know who or what has helped you most! The meetings are in the community room of the Okemos Branch of the Capital Area District Library, and are casual. We’ll provide filtered water. You can bring your own snack or beverages.

Contact Gayle Yankee at capitalareaeds@gmail.com, or find more information through the Facebook page and website.


We are officially part of the Marfan Foundation Communities, but we ore open to and encourage participation by anyone impacted by any connective tissue disorder. We meet on the last Sunday of the month at First Presbyterian Church in Royal Oak, MI. Due to summer vacations, the group will not be meeting in June and July. We will resume regular monthly meetings in August. Please contact Gary Moultrup at gmoultrup@gmail.com with any questions.

Grand Rapids area

Our Grand Rapids Area EDS Support Dazzle was formed in 2017. We plan to have regular meetings and social get-togethers. We understand that EDSers have our good days and our bad days. Even if you cannot attend the meetings regularly, we can still communicate through our web pages. Let’s make local connections with each other, supporters and care providers. Gather on Facebook at Grand Rapids Area EDS Support Dazzle (Ehlers-Danlos Syndrome) or on our web page Grand Rapids Area EDS Support Dazzle.

EDS Affiliate Logo


Serving northern Indiana and southwestern Michigan. Quarterly meetings are typically held in South Bend or Mishawaka. We also have an EDS awareness booth at the Sunburst Races Expo. For more information or to be put on the mailing list, email michianaednf@gmail.com.

Michigander EDS Zebras

This an EDS support group for those living or who have lived in Michigan and who have or love someone with EDS. For more information email hukleberrie@icloud.com.

To add your EDS support group or charity, please complete the Support Group Listing Request form. To become an affiliate of the Society, please visit the Global Affiliation Program page.