Michigan Support Groups and Charities


We are officially part of the Marfan Foundation Communities, but we ore open to and encourage participation by anyone impacted by any connective tissue disorder. We meet on the last Sunday of the month at First Presbyterian Church in Royal Oak, MI. Due to summer vacations, the group will not be meeting in June and July. We will resume regular monthly meetings in August. Please contact Gary Moultrup at gmoultrup@gmail.com with any questions.

Grand Rapids area

Our Grand Rapids Area EDS Support Dazzle was formed in 2017. We plan to have regular meetings and social get-togethers. We understand that EDSers have our good days and our bad days. Even if you cannot attend the meetings regularly, we can still communicate through our web pages. Let’s make local connections with each other, supporters and care providers. Gather on Facebook at Grand Rapids Area EDS Support Dazzle (Ehlers-Danlos Syndrome) or on our web page Grand Rapids Area EDS Support Dazzle.


A ladies support group called, More Than Conquerors, has been started by two sisters. The group is for ladies fighting challenging health conditions such as Lupus, MS, Mixed Connective Tissue Disease, Ehlers-Danlos Syndrome, and more. We are meeting to lift the battle to Jesus Christ through prayer and fellowship. We meet the first Thursday of every month at 7:00 p.m. at Biggby Coffee, 11325 Highland Rd., Hartland, MI 48353. We meet in a private room in the back on the left. Please let me know if you can make it or have any questions!

Contact: Angela at afitzger27@gmail.com

Also, for updates regarding meetings and for discussion please join our group on Facebook group: www.facebook.com/groups/521990001312765?view=info


Serving northern Indiana and southwestern Michigan. Quarterly meetings are typically held in South Bend or Mishawaka. We also have an EDS awareness booth at the Sunburst Races Expo. For more information or to be put on the mailing list, email michianaednf@gmail.com.

If you have and EDS support group or charity you to add to this list, please complete the Support Group Listing Request form.