Missouri Support Groups and Charities

It is important to note that The Ehlers-Danlos Society does not have any ownership or direct financial interest in any of the specific organizations or groups listed below. Groups listed below are in-person support groups and nonprofit organizations/charities. The Ehlers-Danlos Society does not guarantee or make any warranties, express or implied, as to the quality of advice or support given by any listed group or organization. The information listed in the results is based solely upon the data entered by the groups listed.

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Greater Kansas City

A support and awareness group for Greater Kansas City and the surrounding areas for those who have been diagnosed or are seeking diagnosis for Ehlers-Danlos Syndromes (EDS), Hypermobility Spectrum Disorders (HSD) and their associated comorbidities including MCAD, dysautonomia, and POTS.  Partners, friends and family are welcome and encouraged to attend.  Our goal is to support each other and share our EDS/HSD knowledge and experiences in a safe and supportive environment.  Areas of focus could include support group meetings, awareness activities, advocacy, education, social events, sharing resources, fundraising, and partnering with the medical community to improve EDS/HSD healthcare.  For questions please email us at kcedsgroup@gmail.com.

Our support group meeting information can be found on our Facebook page at https://www.facebook.com/groups/edssupportgroupgreaterkc/ 

To add your EDS support group or charity, please complete the Support Group Listing Request form. To become an affiliate of the Society, please visit the Global Affiliation Program page.