It is important to note that The Ehlers-Danlos Society does not have any ownership or direct financial interest in any of the specific organizations or groups listed below. Groups listed below are in-person support groups and nonprofit organizations/charities. The Ehlers-Danlos Society does not guarantee or make any warranties, express or implied, as to the quality of advice or support given by any listed group or organization. The information listed in the results is based solely upon the data entered by the groups listed.
The Asheville support group is for patients, family, friends, and caregivers of those with EDS, MCAD/S, POTS, and other comorbid conditions. Meetings are held on the 4th Saturday of the month from 10am – 12pm at the waiting/community room at Mission MyCare Plus in Biltmore Park. Contact firstname.lastname@example.org or visit facebook.com/ashevilleEDS for more information.
Come talk, listen, and enjoy being around EDS’RS, Chiarians and More. Bring someone with you, bring a pillow, bring anything you’d like to share with the group! We meet every 2nd Saturday of the month at 1pm-3pm at Julia’s Cafe (downstairs orange table and overflow at round table) at 1133 Wendover Rd. Charlotte NC.
Please bring ideas for nutrition (foods, supplements, herbs, and other nutritional alternatives to medications) that helps you through your flares of Chiari, EDS, MCAD, POTS, Dysautonomia, Lupus, IH, TC or related disorders to share with the group…we will have a show and tell. It can be an article, book, expert advice, etc…if you can, bring a handout or provide others where to get information. For further information, call or text Crystal Grampus at 704-449-3517 or email her at email@example.com. For more information about our group and cause, visit our website.
Hampton Roads Area
The EDS Hampton Roads Support Group provides information specific for our area; we meet monthly for fellowship and to discuss various topics related to our conditions. We are still a very small group so please join us and help us grow. You will find a list of recommended doctors for this area in the File section of the Facebook page. You can also contact us directly at firstname.lastname@example.org or ZebraAdvocate@gmail.com.
Raleigh-Durham EDS Awareness Support Group
The Raleigh-Durham EDS Support Group has regular monthly meetings and social get-togethers. We understand that EDSers have our good days and our bad days. Even if you cannot attend the meetings regularly, we can still communicate through our web pages: visit us on Facebook or our group information web page.
To add your EDS support group or charity, please complete the Support Group Listing Request form. To become an affiliate of the Society, please visit the Global Affiliation Program page.