North Carolina Support Groups and Charities


The Asheville support group is for patients, family, friends, and caregivers of those with EDS, MCAD/S, POTS, and other comorbid conditions. Meetings are held on the 4th Saturday of the month from 10am – 12pm at the waiting/community room at Mission MyCare Plus in Biltmore Park. Contact or visit for more information.



Come talk, listen, and enjoy being around EDS’RS, Chiarians and More. Bring someone with you, bring a pillow, bring anything you’d like to share with the group! We meet every 2nd Saturday of the month at 1pm-3pm at Julia’s Cafe (downstairs orange table and overflow at round table) at 1133 Wendover Rd. Charlotte NC.

Please bring ideas for nutrition (foods, supplements, herbs, and other nutritional alternatives to medications) that helps you through your flares of Chiari, EDS, MCAD, POTS, Dysautonomia, Lupus, IH, TC or related disorders to share with the group…we will have a show and tell. It can be an article, book, expert advice, etc…if you can, bring a handout or provide others where to get information. For further information, call or text Crystal Grampus at 704-449-3517 or email her at For more information about our group and cause, visit our website.

Raleigh Durham Dysautonomia & Ehlers Danlos Syndrome Support

Raleigh Durham Dysautonomia & Ehlers-Danlos Syndrome Support includes these conditions and related comorbidities. Join us for monthly support meet-ups held at the Brier Creek Earth Fare conference room. For online support find us on Facebook or you can email for more information. 

Raleigh-Durham EDS Awareness Support Group

The Raleigh-Durham EDS Support Group has regular monthly meetings and social get-togethers. We understand that EDSers have our good days and our bad days. Even if you cannot attend the meetings regularly, we can still communicate through our web pages: visit us on Facebook or our group information web page.

If you have and EDS support group or charity you to add to this list, please complete the Support Group Listing Request form.