It is important to note that The Ehlers-Danlos Society does not have any ownership or direct financial interest in any of the specific organizations or groups listed below. Groups listed below are in-person support groups and nonprofit organizations/charities. The Ehlers-Danlos Society does not guarantee or make any warranties, express or implied, as to the quality of advice or support given by any listed group or organization. The information listed in the results is based solely upon the data entered by the groups listed.
Cincinnati “Cincy Zebras”
Cincy Zebras is a growing community of people living with EDS/HSD, those exploring diagnosis, and their caregivers and support people. We meet regularly in the Montgomery area, and have a large and active online community on Facebook. We strive to provide support and education, increase awareness, and to help people living in the Cincinnati area through their journey with EDS/HSD. We do this by helping members to find knowledgeable doctors, learn about coexisting conditions, and advocate for treatment that they may need. More information is available via email or by requesting to join our Facebook group!
Our group is made up of people who are affected by Chronic Pain conditions, including Ehlers-Danlos Syndrome, Fibromyalgia, or any Chronic Pain Condition. We welcome those who have EDS, those who have loved ones with EDS, and those still seeking an EDS diagnosis. We meet regularly and have an active Facebook Page to support each other and share information and experiences between meetings. Meeting dates are sent out to all who request to be added to our e-mail distribution list and are posted on our Facebook Page. Anyone interested in joining our group, Serenity Chronic Pain, is welcome to e-mail BPiehl@aol.com and/or request to join our Facebook Page.
To add your EDS support group or charity, please complete the Support Group Listing Request form. To become an affiliate of the Society, please visit the Global Affiliation Program page.