Ohio Support Groups and Charities

It is important to note that The Ehlers-Danlos Society does not have any ownership or direct financial interest in any of the specific organizations or groups listed below. Groups listed below are in-person support groups and nonprofit organizations/charities. The Ehlers-Danlos Society does not guarantee or make any warranties, express or implied, as to the quality of advice or support given by any listed group or organization. The information listed in the results is based solely upon the data entered by the groups listed.

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Cincinnati “Cincy Zebras”

Cincy Zebras is a growing community of people living with EDS/HSD, those exploring diagnosis, and their caregivers and support people. We meet regularly in the Montgomery area, and have a large and active online community on Facebook. We strive to provide support and education, increase awareness, and to help people living in the Cincinnati area through their journey with EDS/HSD. We do this by helping members to find knowledgeable doctors, learn about coexisting conditions, and advocate for treatment that they may need. More information is available via email or by requesting to join our Facebook group!


The Cleveland “EDS Support & Friendship Group” has regular monthly meetings, communications, and social activities on the East and West sides. Our Goals are: INFORMATION, SUPPORT, & AWARENESS. Please join us!

See meeting details on our website and use the “contact us” button to email our group leader. Find us on Facebook under the name: Cleveland, Ohio EDS Support Group.

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The Dayton Zebras support group has been meeting face to face, monthly since 2013.  We offer an open Facebook page to share information with friends and family, as well as private group for EDS/HSD patients and caregivers only. The page and the group can both be found under the name Dayton Zebras.

The Dayton Zebras meet the third Thursday of every month at 7pm.  We meet in the Chestnut Street Community Room, 70 Birch Alley, Suite 108 (Ritch Building), Beavercreek Ohio 45440.  These meeting are open to all ages, although some topics may not be appropriate for certain age groups. Please check with us via email or FB for meeting topics and a calendar of events.

The Dayton Zebra Teens, grades 6-12, meet once a month in different locations and on different days. This is so we can meet the needs of our busy teens as best as possible.  For more information or a calendar of upcoming meetings and events please email us or contact us on FB.

To learn more about the group, contact Andrea Julian at andreadjulian@gmail.com. You can also find them on Facebook under the name of Dayton Zebras.


Our group is made up of people who are affected by Chronic Pain conditions, including Ehlers-Danlos Syndrome, Fibromyalgia, or any Chronic Pain Condition. We welcome those who have EDS, those who have loved ones with EDS, and those still seeking an EDS diagnosis. We meet regularly and have an active Facebook Page to support each other and share information and experiences between meetings. Meeting dates are sent out to all who request to be added to our e-mail distribution list and are posted on our Facebook Page. Anyone interested in joining our group, Serenity Chronic Pain, is welcome to e-mail BPiehl@aol.com and/or request to join our Facebook Page.

To add your EDS support group or charity, please complete the Support Group Listing Request form. To become an affiliate of the Society, please visit the Global Affiliation Program page.