Oklahoma Support Groups and Charities

It is important to note that The Ehlers-Danlos Society does not have any ownership or direct financial interest in any of the specific organizations or groups listed below. Groups listed below are in-person support groups and nonprofit organizations/charities. The Ehlers-Danlos Society does not guarantee or make any warranties, express or implied, as to the quality of advice or support given by any listed group or organization. The information listed in the results is based solely upon the data entered by the groups listed.


The Norman OK EDS Support Group has monthly meetings and social get-togethers. This group is affiliated with the OKZEBRAS online Facebook page. For more information and location of meetings, you can contact Kate at normanokeds@gmail.com.

Oklahoma City

EDSOK has informal meet-ups once a month in both Tulsa and Oklahoma City, and quarterly meetings to discuss the future and goals of our group. We operate out of our Facebook page. Meeting location and times are announced on the group. For more information, feel free to contact Courtney Toumayan at EDSOklahoma@gmail.com.

To add your EDS support group or charity, please complete the Support Group Listing Request form. To become an affiliate of the Society, please visit the Global Affiliation Program page.