Pennsylvania Support Groups and Charities

It is important to note that The Ehlers-Danlos Society does not have any ownership or direct financial interest in any of the specific organizations or groups listed below. Groups listed below are in-person support groups and nonprofit organizations/charities. The Ehlers-Danlos Society does not guarantee or make any warranties, express or implied, as to the quality of advice or support given by any listed group or organization. The information listed in the results is based solely upon the data entered by the groups listed.


We are glad you are thinking about joining our support group! Here you will find information about the upcoming meetings for the Erie EDS/ CRPS/ Invisible Illness Support Group.

All meetings will be held on the second Wednesday of the month.

UPMC Hamot
201 State Street
Erie, PA 16550
Ground Floor Conference Room G3

Enter on the first floor, and take the elevator to the lower level.
(When exiting the elevator, you will see a sign pointing to the direction of the room – which is to the right of the cafeteria)

Time: 7pm – 8pm
Group Meeting for EDS, CRPS/RSD, POTS, FMS, CTDs, and Chronic Pain
What to bring: Your family & friends… Your tips & suggestions, favorite doctors’ names, and a snack to share (optional)!
Contact: Amanda Yacone, Group Leader
You can also reach us through our Facebook page:


The Ehlers-Danlos Syndrome Support Group of Central PA meets in Lancaster every third Saturday of every month at the Lancaster Wellness Center/Suburban OutPatient Pavilion. For more information, contact Dolores Leba at, or find us on Facebook at the Ehlers Danlos Syndrome Support Group of Central PA.


The Ehlers-Danlos Syndrome Support Group of Greater Philadelphia (EDS Philly) provides networking, information, and support for people with EDS, their families, and their friends. Please join us at our quarterly meetings, e-mail us at, or connect with us on Facebook.

EDS Affiliate Logo


The Ehlers-Danlos Syndrome Support Group of the Pittsburgh Area. We are currently meeting in the Aspinwall/Fox Chapel area, on a Saturday afternoon. The Pittsburgh Area group provides information, networking, and support for people with EDS & Connective Tissue Disorders (CTD), their families and friends. For more information please email

To add your EDS support group or charity, please complete the Support Group Listing Request form. To become an affiliate of the Society, please visit the Global Affiliation Program page.