The Ehlers-Danlos Syndromes Zebras of Southern Africa (EDSZSA)
Pronounced “Edza”, we are a brand new group of EDS Zebras from Southern Africa (or Subsaharan Africa). We believe in the new “rules” that have come out of the International Consortium and the Ehlers-Danlos Society. and want to be a place where all people of our region can come for support, up to date and correct information, and have a voice, through us, on the world stage.
At present we are too small to have our own website, etc., but I will be running the group through my blog (www.myhEDS.wordpress.com) and my author website (@JPeaSmith or Jennifer Peacock-Smith ), and my Instagram account (@MahEeds).
We are registered with Rare Diseases South Africa as well. At present we make up about 15 families, with up to 4 living generations affected.We are in Johannesburg, South Africa
To add your EDS support group or charity, please complete the Support Group Listing Request form. To become an affiliate of the Society, please visit the Global Affiliation Program page.