It is important to note that The Ehlers-Danlos Society does not have any ownership or direct financial interest in any of the specific organizations or groups listed below. Groups listed below are in-person support groups and nonprofit organizations/charities. The Ehlers-Danlos Society does not guarantee or make any warranties, express or implied, as to the quality of advice or support given by any listed group or organization. The information listed in the results is based solely upon the data entered by the groups listed.
Our EDS Support Group – Jackson TN was originally formed in December 2016. We welcome those who have EDS, those who have loved ones with EDS, and those still seeking an EDS diagnosis
To learn more about the group, contact us at EDSJacksonTN@yahoo.com
Knoxville and surrounding region
East TN Ehlers-Danlos Support Group is a support group for people with Ehlers-Danlos syndrome living in and/or familiar with the East TN region. We welcome anyone with or looking for diagnoses in the “cluster,” including POTS and other forms of dysautonomia, Mast Cell Activation Disorder/Syndrome, Chiari, and so on. This group is intended as a support outlet, an exchange of resources and information, and a place to connect with new friends who understand what it’s like to live with these chronic illnesses.
We have an active Facebook group which can be found by clicking here.
Monthly in-person group meetings are held in Knoxville. For a current list of meeting dates or more information, please email firstname.lastname@example.org.
EDS Mt Juliet welcomes anyone with EDS/HSD, their family members, friends, and caregivers. We meet monthly to share information, our experiences, offer support and perhaps a laugh or two. This is a group where you can come as you are and make new friends who get what it’s like to live with EDS/HSD. We meet every fourth Sunday from 2:00 pm – 4:00 pm at Rutland Place.
Contact EDSinMtJuliet@gmail.com for information.
The Nashville Area EDS and HSD focused, chronic pain support group serves those affected personally, diagnosed or not, and those affected by caring for another in some way, and welcomes anyone seeking support for invisible illness or chronic pain.
Informal Monthly Support Meetings are held the first Saturday of the month from 1:00–3:00pm with the goal of providing encouragement and support in a safe space. Come share a triumph or a struggle, come with questions, come as you are, but please join us!
For more information or to join the Nashville Area email list, please contact Deanna Smith at Deanna.email@example.com
To add your EDS support group or charity, please complete the Support Group Listing Request form. To become an affiliate of the Society, please visit the Global Affiliation Program page.