Texas Support Groups and Charities

It is important to note that The Ehlers-Danlos Society does not have any ownership or direct financial interest in any of the specific organizations or groups listed below. Groups listed below are in-person support groups and nonprofit organizations/charities. The Ehlers-Danlos Society does not guarantee or make any warranties, express or implied, as to the quality of advice or support given by any listed group or organization. The information listed in the results is based solely upon the data entered by the groups listed.

Dallas/Ft. Worth – DFW Ehlers-Danlos Support Group

We have created a positive, loving place for zebras in North Texas, Louisiana, and Oklahoma to ask questions, receive personalized physician referrals, and socialize with others.

We have quarterly meetings and scattered social events throughout the metroplex as well as maintain a private Facebook page for zebras only and a public page for family and friends.

Private – https://m.facebook.com/groups/302408063243257?ref=bookmarks

Public – https://m.facebook.com/DallasEDSGroup/?ref=bookmarks

We can also be reached through email at dallaszebras@gmail.com or 469-766-7377.


EDS Texas is a medically oriented Support Group for Texans through online group activity, face-to-face meetings, Good Doctor Lists, tips for better management, and medical research.

EDS Texas holds meetings in the Houston area on a rotational basis – Clear Lake, Katy, The Woodlands and Med Center Inner Loop. Meetings are usually held at a library or community center on an easily accessible highway but may change depending on special speaker or event. Please visit or join: EDS Texas Facebook group (https://www.facebook.com/groups/EDSTexas/) for the Calendar/Meeting Schedule. You may also email eds.texas@outlook.com to be placed on the email-only group for meeting notifications or if you wish to contact the group organizer.

To add your EDS support group or charity, please complete the Support Group Listing Request form. To become an affiliate of the Society, please visit the Global Affiliation Program page.