Vermont Support Groups and Charities

The Ehlers-Danlos Syndrome Vermont group meets to provide support, education, and resources to members. A typical meeting consists of a speaker or webinar, discussion or question/answer period, and an opportunity to Share our Strategies or for members to socially mix informally afterwards. EDS VT meets quarterly on the second Saturday in January, April, July, and October from 11 am – 2 pm in the Frymoyer Community Health Resource Center at the University of Vermont Medical Center (please bring your own lunch as the coffee shop will be closed). Vermonters who struggle with EDS, their loved ones, and interested healthcare providers are encouraged to join via our Facebook page – Ehlers-Danlos Syndrome Vermont. Please stay home and care for yourself if you are have a cold or a virus as some members have immune deficiencies. We look forward to meeting new zebras!

Contact us at for more information or join our Facebook group.

If you have and EDS support group or charity you to add to this list, please complete the Support Group Listing Request form.