It is important to note that The Ehlers-Danlos Society does not have any ownership or direct financial interest in any of the specific organizations or groups listed below. Groups listed below are in-person support groups and nonprofit organizations/charities. The Ehlers-Danlos Society does not guarantee or make any warranties, express or implied, as to the quality of advice or support given by any listed group or organization. The information listed in the results is based solely upon the data entered by the groups listed.
Metro DC Metropolitan Area EDS/HSDs Support Group
Our support group serves the DC metropolitan area, but all EDS/HSDs and associated co-morbid conditions people, family, friends, and caregivers in any location are welcomed at our support group meetings. Our goal is to encourage sharing and support among members, their families, friends, and caregivers, while learning more about EDS/HSDs and associated conditions. Our meetings today generally have a minimum participation of 30-50 people depending on the speaker.
We hold quarterly meetings in March, June, September, and December with speakers we select and the type of speakers our members request at any given time who may be of benefit to them. Any extra time at we dedicate to group discussion.
We also support group members in DC, Northern VA, and Suburban Maryland between meetings where possible who need help with accompanying them to doctor appointments, helping with paperwork, helping find doctors/practitioners/providers they request that others have recommended in the community, etc. We encourage and request members to work closely with their doctors/practitioners/providers where necessary. We have a couple of volunteers when asked who are willing to help us with future meetings and group events in the metropolitan DC area which we are happy to participate.
To add your EDS support group or charity, please complete the Support Group Listing Request form. To become an affiliate of the Society, please visit the Global Affiliation Program page.