We are in WA State and support all local hypermobile EDSers and JHSers with formal diagnoses and their local support people. We have a very active closed Facebook group and we meet semi-annually hosted by geneticists for the University of Washington, Drs Byers and Murray. You can ask to join at www.facebook.com/groups/WAEDS and we will screen you in since it is a closed group for security of our members. You can also reach us through emailing firstname.lastname@example.org.
Inland Northwest Ehlers-Danlos Support Group
We are an EDS Support Group based out of Spokane, WA. We welcome people specifically from Washington, Idaho, Montana, and Oregon! We are happy to accept people both with formal diagnosis or suspected Ehlers Danlos, as well as those who care for a Zebra (parents, spouses, etc).
You can find us on Facebook here: www.facebook.com/groups/555958577887799/
It’s the best way to stay in the loop!
Once you go to the page, please click “request to join group”, then follow this link to take our entrance survey 😊
You will be asked basic information, as we want to keep our group a safe space.
Once we see your request and survey, we will add you right away!
We respect that we are all differently abled and may not be able to get to meetings, but while we are based online, we are primarily a place to meet others in your area with EDS!
We will be hosting regular meetings in the Spokane area, Tri Cities area, and Seattle-Tacoma area, and you are all encouraged to attend! We will also be doing awareness activities, and having open discussion. We are NOT medical professionals, and can only give advice from personal experience, so please speak to your health care providers about concerns as well.
Please feel free to contact an admin with any questions or concerns at email@example.com or www.chronicpainpartners.com/inland-northwest-eds-support-group/!
If you have and EDS support group or charity you to add to this list, please complete the Support Group Listing Request form.