Wisconsin Support Groups and Charities

It is important to note that The Ehlers-Danlos Society does not have any ownership or direct financial interest in any of the specific organizations or groups listed below. Groups listed below are in-person support groups and nonprofit organizations/charities. The Ehlers-Danlos Society does not guarantee or make any warranties, express or implied, as to the quality of advice or support given by any listed group or organization. The information listed in the results is based solely upon the data entered by the groups listed.

EDS Affiliate Logo

Madison Area – EDS Wisconsin Madison Area Support Group

This support group is sponsored by EDS Wisconsin Inc. and meets in or near Madison, Wisconsin. The leader is who can be reached at johannayoung@gmail.com o0. More information can be found at www.edswi.org.

Milwaukee Area – EDS Wisconsin Milwaukee Area Support Group

This support group is sponsored by EDS Wisconsin Inc. and meets monthly in or near Milwaukee, Wisconsin. The leaders are Christine Quackenboss and Dawn Dembosky. Christine can be reached at ccquackenboss@gmail.com or 920-917-9930. More information can be found at www.edswi.org.

EDS Affiliate Logo

EDS Wisconsin Inc

Our mission is to provide support and resources to patients and medical professionals affected by Ehlers-Danlos syndromes and related conditions in Wisconsin. Our vision is a better Wisconsin where EDS and related conditions are better understood, treated and supported. Strengthening Connections! Contact Tammy Kosbab at edswisconsin@gmail.com and find more information at www.edswi.org.




To add your EDS support group or charity, please complete the Support Group Listing Request form. To become an affiliate of the Society, please visit the Global Affiliation Program page.