Support Groups and Charities

We are about to start updating our support group network, and have been trying to reach groups through available contact information. Please watch your email or this page for information on being part of the new listings. If you haven’t received an email, please get in touch with our Local Groups and Outreach Liaison, Shani Weber, at

If you have and EDS support group or charity you to add to this list, please complete the Support Group Listing Request form.