Tag Archive: awareness

vanessa f story

I’m newly diagnosed with EDS

After decades of dealing with quirky, what I thought were unrelated, health issues I was finally referred to a specialist in Boston. Last month, after a thorough evaluation and review
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Sydney smiles into the camera wearing her neck brace

EDS has not broken my spirit

There are so many times where I’ve been to a doctor’s appointment, emergency room, etc. and the physician uttered the phrase I dread the most, “There’s nothing we can do.
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