Tag Archive: Coping

A PHYSICIAN ON A MISSION

I am a much different doctor now – honestly, I thought I was good before EDS – but I understand the fear and helplessness of having doctors look at you like “it’s all in your head”.
View page


THE ONLY BODY I HAVE

There came a point in my life when I realized that this body belonged to me. I have this body, it is mine to do with it what I please, but it is also the only one I have.
View page


I CAN SURVIVE

This was the card I was dealt. Sure, it might not be the easiest card, but it’s doable. I can survive this. And I will survive this.
View page


IF I HAD KNOWN

Looking back through the lens of having a disability, much of the suffering that I have experienced over decades now makes sense.
View page


I WANT TO LIVE, NOT JUST SURVIVE

I cried in the doctor’s office, not because I learned that I had an illness without a cure, a genetic disease, that I will have to deal with my all life. No no, I cried because I wasn’t crazy. It wasn’t in my head!
View page


LIFE LESSONS FROM EDS

I might need to change or cancel plans, make a different meal than I intended, take leave from work to have surgery, or change my lifestyle completely. The only way to survive these frustrating and sometimes devastating events is to continue to be flexible and adapt to my circumstance.
View page


LIVING IN THE GRAY

I am a rigid rule follower, unforgivingly strict about the outline of my day, and a very self-driven entrepreneur. Look, I’ll be honest; everything is great as long as everything goes exactly as I have planned it. This is why, perhaps, that my recent diagnosis of EDS completely turned my world upside down.
View page