Tag Archive: craniocervical instability

1st image is a hybrid contemporary and Renaissance-style portrait, a woman with a calm dignified expression regarding the viewer, wearing a crisp white neoprene dress and a cervical collar evoking a European ruff. The background, clouds and blue sky. In her hands, a little toy brain in an astronaut helmet.

Patient support groups helped me find care.

I was diagnosed with hypermobile EDS (hEDS) in January 2018. In October 2019, I started experiencing debilitating fatigue and neurological symptoms. Over the course of the next year, parallel to the pandemic, I went from being able to walk ten miles, to five miles, to one mile, to a quarter of a mile before I
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