Tag Archive: Dance

ceciley doing ballet

Our daughter is learning to speak up and advocate for herself

Cecily is a vibrant and social, but tender-hearted 12-year-old ballet dancer who, despite her multiple diagnoses, not only finds true joy in the day to day but inspires it in all of us.  After years of daily headaches (from the time she could express herself in words), “growing pains”, progressive bilateral leg deformities, and finally
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Angie wears a black dress and red shoes, and is surrounded by birthday decorations, glitter, and on the floor sits a zebra ball!

I had to heed my own advice and stop hiding my conditions

My life has been nothing short of exhausting. There’s nothing like a life interrupted to gain perspective.  Having grown up with a brother who suffers from quadriplegia and profound retardation as a result of Cerebral Palsy and severe intellectual impairment, I became grounded very young and was raised to never take anything for granted. However;
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Jasmine story

I channel my pain into passion when I dance

Hi, my name is Jasmine and this is my story of living with EDS.  Growing up, dance was like oxygen for me, I needed it to survive. I was dancing six days a week by the age of 9 and dance was my passion. I was constantly told by my dance teachers that only weak
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Dear Warriors…..

Life has this funny way of telling you things you can and can’t do, over and over again. As a child, we knew something was “off” with the way I acted, walked, and did other activities, but we weren’t quite yet at a stage where we could pin point what it was. As I began
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LIFE LESSONS FROM EDS

I might need to change or cancel plans, make a different meal than I intended, take leave from work to have surgery, or change my lifestyle completely. The only way to survive these frustrating and sometimes devastating events is to continue to be flexible and adapt to my circumstance.
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