My name is Polina and my journey is pretty typical of many zebras. I started classical ballet at the age of 5 and continued well into my teens, I was often singled out and celebrated for my flexibility. Puberty was a painful process, my joints were on fire, especially my hips and knees. I was
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When I was two years old, I peered through the window of the dance studio to watch my three older sisters take their classes. I was ready for my turn. Little did my mom realize how much dance would impact all of our lives. My sisters and I all continued dancing through high school and
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Cecily is a vibrant and social, but tender-hearted 12-year-old ballet dancer who, despite her multiple diagnoses, not only finds true joy in the day to day but inspires it in all of us. After years of daily headaches (from the time she could express herself in words), “growing pains”, progressive bilateral leg deformities, and finally
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My life has been nothing short of exhausting. There’s nothing like a life interrupted to gain perspective. Having grown up with a brother who suffers from quadriplegia and profound retardation as a result of Cerebral Palsy and severe intellectual impairment, I became grounded very young and was raised to never take anything for granted. However;
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Hi, my name is Jasmine and this is my story of living with EDS. Growing up, dance was like oxygen for me, I needed it to survive. I was dancing six days a week by the age of 9 and dance was my passion. I was constantly told by my dance teachers that only weak
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Life has this funny way of telling you things you can and can’t do, over and over again. As a child, we knew something was “off” with the way I acted, walked, and did other activities, but we weren’t quite yet at a stage where we could pin point what it was. As I began
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I might need to change or cancel plans, make a different meal than I intended, take leave from work to have surgery, or change my lifestyle completely. The only way to survive these frustrating and sometimes devastating events is to continue to be flexible and adapt to my circumstance.
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