Tag Archive: Diagnosis Journey

I am proud of myself and every one of you for facing this battle

By Hallie W. Hi everyone, I’m Hallie. I am 18 years old, and received my hypermobility Ehlers-Danlos diagnosis last year, at 17. As I’m sure most of you know, the feelings regarding an Ehlers-Danlos diagnosis come in phases. I felt the extreme relief at having an answer, and verifying my sanity. I felt the “I
View page


A PHYSICIAN ON A MISSION

I am a much different doctor now – honestly, I thought I was good before EDS – but I understand the fear and helplessness of having doctors look at you like “it’s all in your head”.
View page


SHINING AS BRIGHTLY AS I CAN

Over the past five months, I have powered through the pain. I have continued to make the most out of my abilities. Just three weeks ago I had the surgery to remove my broken hardware. I am excited to no longer be known in my school as “the girl with the broken back.” I know that I am resilient, that I am capable of anything I imagine myself to be.
View page


IF I HAD KNOWN

Looking back through the lens of having a disability, much of the suffering that I have experienced over decades now makes sense.
View page