When I was little, my favorite book was Heidi by Johanna Spyri. I have read the book so many times that I think I’ve got it memorized. The character I
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My name is Charlotte I am 23 years old and I have hypermobile Ehlers-Danlos syndrome (hEDS) and Marfans syndrome. For as long as I can remember I have ached. Especially
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CW // Contains discussion of mental health concerns and suicide. Whether mental or physical, I have always had the ability to write about my pain. Face to face, vocally, and
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This story was shared in Spanish, the English version has been translated and in the event of any discrepancies, the original version below with prevail. I have always been the
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Cecily is a vibrant and social, but tender-hearted 12-year-old ballet dancer who, despite her multiple diagnoses, not only finds true joy in the day to day but inspires it in
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After 24 years of searching, countless genetic tests and doctor appointments, I was given my diagnosis of kyphoscoliotic Ehlers-Danlos syndrome-FKBP14 variant (kEDS-FKBP14). That day, I not only got a name
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