Tag Archive: diagnostic journey

I knew something was wrong despite my tests coming back normal

My name is Charlotte I am 23 years old and I have hypermobile Ehlers-Danlos syndrome (hEDS) and Marfans syndrome. For as long as I can remember I have ached. Especially in my back and legs. I always presumed it was because I was quite tall (5 foot 8), but I noticed that I can’t stand
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