Tag Archive: EDS

Let’s Chat: EDS and HSD Virtual Support Group

Join our wonderful Society team and members of the EDS and HSD community from around the world, for our one hour Let’s Chat: EDS and HSD group. These groups take place around 4 times a month and are a wonderful place to share stories and experiences with others who will understand.   Notes: attendees who
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Let’s Chat: EDS and HSD Virtual Support Group

Join our wonderful Society team and members of the EDS and HSD community from around the world, for our one hour Let’s Chat: EDS and HSD group. These groups take place around 4 times a month and are a wonderful place to share stories and experiences with others who will understand.   Notes: attendees who
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Let’s Chat: EDS and HSD Virtual Support Group

Join our wonderful Society team and members of the EDS and HSD community from around the world, for our one hour Let’s Chat: EDS and HSD group. These groups take place around 4 times a month and are a wonderful place to share stories and experiences with others who will understand.   Notes: attendees who
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Let’s Chat: EDS and HSD Virtual Support Group

Join our wonderful Society team and members of the EDS and HSD community from around the world, for our one hour Let’s Chat: EDS and HSD group. These groups take place around 4 times a month and are a wonderful place to share stories and experiences with others who will understand.   Notes: attendees who
View page


Let’s Chat: EDS and HSD Virtual Support Group

Join our wonderful Society team and members of the EDS and HSD community from around the world, for our one hour Let’s Chat: EDS and HSD group. These groups take place around 4 times a month and are a wonderful place to share stories and experiences with others who will understand.   Notes: attendees who
View page


Let’s Chat: EDS and HSD Virtual Support Group

Join our wonderful Society team and members of the EDS and HSD community from around the world, for our one hour Let’s Chat: EDS and HSD group. These groups take place around 4 times a month and are a wonderful place to share stories and experiences with others who will understand.   Notes: attendees who
View page


Let’s Chat: EDS and HSD Virtual Support Group

Join our wonderful Society team and members of the EDS and HSD community from around the world, for our one hour Let’s Chat: EDS and HSD group. These groups take place around 4 times a month and are a wonderful place to share stories and experiences with others who will understand.   Notes: attendees who
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Jaqueleine and her horse

I want to become a doctor to help children with genetic conditions

Hi, I am Jaqueline, I‘m 18 years old and from Germany. I was diagnosed with Ehlers-Danlos syndrome when I was 17 years old. We still don’t know what subtype I have, as further genetic diagnostics are pending. Hypermobility has had its consequences: my knee joints have been dislocating since I was six years old, which
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A photo of me during my time in service with the 891st Engineer Battalion, 235th Regional Support Group of Fort Riley, Kansas.

I advocate for those with invisible disabilities

I served eight years in the United States Army as a 12 bravo -Combat Engineer. We carry all explosives that you would need to clear or breach any obstacles in the army’s way. ⁠ ⁠ I always had issues growing up but never could find a reason for my pain and joint issues. One day,
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