I am 54 years old. Last week I just got the diagnosis that I was begging, even crying out to find. Ehlers-Danlos syndrome. Sounds like a complicated name. Of course, telling your family for the first time is like, “You’ve got a problem with your ear? – no dad, E-H-L-E-R-S, not EAR!” What the heck
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We cherish the opportunities our in-person events give us: meeting so many of you and enabling people living with the Ehlers-Danlos syndromes and hypermobility spectrum disorders a chance to connect with others sharing similar experiences, yet this year has shown us how much we can accomplish virtually – and how many more people impacted by these conditions
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Recognizing the hugely important roles nurses play in the care of patients with Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD), The Ehlers-Danlos Society is excited to share with you the launch of a new EDS ECHO program specifically for nurses. We are equally delighted to announce this during May Awareness 2020 and in support
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EDS ECHO is tackling several key issues facing patients with the Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorder (HSD): supporting clinicians in increasing their knowledge; helping clinicians network with each other to discuss care; increasing access to care by increasing the number experienced clinicians, and supporting community advocates in raising awareness of EDS and HSD.
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The Ehlers-Danlos Society is delighted to launch the new vEDS ECHO: a program led by Dr. Sherene Shalhub dedicated to increasing awareness and education in all aspects of diagnosis and management of vascular Ehlers-Danlos syndrome (vEDS). VEDS ECHO is a revolutionary program that seeks to support health professionals around the world in caring for patients
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