After becoming The Ehlers-Danlos Society we launched the website www.ehlers-danlos.com – the EDNF website was closed down. The old website www.ednf.org has unfortunately been taken over and is illegally impersonating The Ehlers-Danlos National Foundation, and consequently The Ehlers-Danlos Society. We have filed all necessary reports with the FBI as this is an internet crime that falls […] View page
