Tag Archive: fatigue

The image shows me drawing the head of a green parrot using green colour pencils, the rest of its body is unfinished. Two hands are shown with ringsplints and c-splints on the wrists.

Giving up on dreams but not giving up

Ever since I was little I was an active child, not necessarily sporty but always busy with something, from playing outside to knitting and crocheting. When I started first grade and learned to write I started to get wrist pain, but given my large range of creative hobbies, my parents and I blamed it on
View page

Alyssa on her wedding day leaned over and kissing her husband

My EDS is always two steps forward and five steps back

Hello, my name is Alyssa Kelly, and I was formally diagnosed with hypermobile Ehlers-Danlos syndrome (hEDS) by a geneticist when I was 21. My mother knew something was wrong from the day I was born prematurely.  From that day forward it started, I had five sets of tubes from age 6 months to 5 years.  
View page

quinn j story

YouTube helped me to advocate for a diagnosis

My name is Quinn and I’m just like you. I love to be with my friends, I love to cook, create art, and be in nature. I have a fascination with decorative skulls and an obsession with collecting flavored chapstick. I have lived with chronic illnesses my whole life. I was born with a urea
View page