Tag Archive: fatigue

The image shows me drawing the head of a green parrot using green colour pencils, the rest of its body is unfinished. Two hands are shown with ringsplints and c-splints on the wrists.

Giving up on dreams but not giving up

Ever since I was little I was an active child, not necessarily sporty but always busy with something, from playing outside to knitting and crocheting. When I started first grade and learned to write I started to get wrist pain, but given my large range of creative hobbies, my parents and I blamed it on
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Alyssa on her wedding day leaned over and kissing her husband

My EDS is always two steps forward and five steps back

Hello, my name is Alyssa Kelly, and I was formally diagnosed with hypermobile Ehlers-Danlos syndrome (hEDS) by a geneticist when I was 21. My mother knew something was wrong from the day I was born prematurely.  From that day forward it started, I had five sets of tubes from age 6 months to 5 years.  
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quinn j story

YouTube helped me to advocate for a diagnosis

My name is Quinn and I’m just like you. I love to be with my friends, I love to cook, create art, and be in nature. I have a fascination with decorative skulls and an obsession with collecting flavored chapstick. I have lived with chronic illnesses my whole life. I was born with a urea
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