After 24 years of searching, countless genetic tests and doctor appointments, I was given my diagnosis of kyphoscoliotic Ehlers-Danlos syndrome-FKBP14 variant (kEDS-FKBP14). That day, I not only got a name for the condition that plays such an immense role in my life, but I got a tool: I got a name, a word, to help […] View page
