Tag Archive: hEDS

Living with pain

My name is Kyle Fries and I was diagnosed with hypermobile Ehlers-Danlos syndrome (hEDS) when I was 14 years old. I have had problems for as long as I can
View page


young teenage girl sitting in her wheelchair smiling next to a Christmas tree on a hospital inpatient ward.⁠

I’m glad to have answers

I had my first shoulder dislocation at age 12 and my first knee dislocation; I now have about ten a day! Growing up I was naturally flexible and didn’t have
View page


Our voices need to be heard

Ever since I could remember, I have had to endure random and unexplainable injuries, body discomfort, and health complications, often what doctors brushed off as “growing pains” my entire life.
View page