Tag Archive: hypermobile EDS

a photo of Katherines hand, her thumb is bent back and touching her wrist

Stuck in limbo

My Ehlers-Danlos syndrome (EDS) went undetected until I joined the army and during basic training, developed stress fractures in my hips. After being discharged and going into an Aviation Maintenance
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Our voices need to be heard

Ever since I could remember, I have had to endure random and unexplainable injuries, body discomfort, and health complications, often what doctors brushed off as “growing pains” my entire life.
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The second one is of me sitting on a peak when we had gone hiking in Denali national park. I have hope that I will be able to get out of the wheelchair and hike again one day. August 2018

Make every moment count

My story is so crazy, but everyone probably says that. I didn’t have a parent who watched over my health as most parents do but looking back I can tell
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Jennifer and her service dog

Why I ROAR!

When I was a kid, I was always hurting myself whether a sprained ankle a trip, or a fall. I experienced growing pains, horrible menstrual cycles. I was always very
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Dana

My pain management journey

I finally figured out why my body seemed to be acting against me. I was 20 years old when I was first diagnosed with Ehlers-Danlos syndrome (EDS). I was in
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Carin holding ice above her head in the water

Ice baths and cold river swimming

My name is Carin. I grew up here in Massachusetts, I was an avid backpacker and through-hiker, ecologist, explorer, traveler, dancer, and a hard worker. Now, I’m lucky if I
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