My name is Polina and my journey is pretty typical of many zebras. I started classical ballet at the age of 5 and continued well into my teens, I was
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My Ehlers-Danlos syndrome (EDS) went undetected until I joined the army and during basic training, developed stress fractures in my hips. After being discharged and going into an Aviation Maintenance
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The Ehlers-Danlos Society is delighted to announce that 1000 individuals have been invited for enrollment for the Hypermobile Ehlers-Danlos Genetic Evaluation (HEDGE) study! We continue to recruit for the study
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The Ehlers-Danlos Society is delighted to have provided funding as part of the Molecular Studies in hEDS and HSD $1 million grant for this research project titled, “Hypermobile Ehlers-Danlos syndrome
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Ever since I could remember, I have had to endure random and unexplainable injuries, body discomfort, and health complications, often what doctors brushed off as “growing pains” my entire life.
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Disclaimer: Individuals undertake their chosen activities at their own risk. My name is Jack Orman, I am 24 years old and currently living in Colorado. I was diagnosed with hypermobile
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My story is so crazy, but everyone probably says that. I didn’t have a parent who watched over my health as most parents do but looking back I can tell
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When I was a kid, I was always hurting myself whether a sprained ankle a trip, or a fall. I experienced growing pains, horrible menstrual cycles. I was always very
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I finally figured out why my body seemed to be acting against me. I was 20 years old when I was first diagnosed with Ehlers-Danlos syndrome (EDS). I was in
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My name is Carin. I grew up here in Massachusetts, I was an avid backpacker and through-hiker, ecologist, explorer, traveler, dancer, and a hard worker. Now, I’m lucky if I
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