Tag Archive: hypermobility

Thank you for being part of the London HEDGE screening

The Ehlers-Danlos Society would like to say a big thank you to Professor Qasim Aziz and all of the team at The Wingate Institute who have helped us last weekend bring to London the HEDGE genetic study, devoted to finding the underlying genetic markers for hypermobile EDS (hEDS). “It’s so incredible being part of such […]
View page

I’m the girl who’s always broken

By Zoey B. I’m the girl who’s always broken. For real. Some kids actually don’t know my name. I’m just referred to as the girl who’s always broken. I mean, for them it probably seems like it. My whole life I was always very flexible, doing weird things with my body other kids couldn’t do. […]
View page

I am proud of myself and every one of you for facing this battle

By Hallie W. Hi everyone, I’m Hallie. I am 18 years old, and received my hypermobility Ehlers-Danlos diagnosis last year, at 17. As I’m sure most of you know, the feelings regarding an Ehlers-Danlos diagnosis come in phases. I felt the extreme relief at having an answer, and verifying my sanity. I felt the “I […]
View page